{"id":134368,"date":"2022-11-16T02:06:09","date_gmt":"2022-11-16T02:06:09","guid":{"rendered":"https:\/\/labinsights.com\/acf_article\/%d1%80%d0%b5%d0%b4%d0%ba%d0%be%d0%b5-%d0%b3%d0%b5%d0%bd%d0%b5%d1%82%d0%b8%d1%87%d0%b5%d1%81%d0%ba%d0%be%d0%b5-%d0%b7%d0%b0%d0%b1%d0%be%d0%bb%d0%b5%d0%b2%d0%b0%d0%bd%d0%b8%d0%b5-%d0%b8-%d0%b4%d0%b8\/"},"modified":"2025-08-04T08:44:50","modified_gmt":"2025-08-04T08:44:50","slug":"rare-genetic-disease-and-the-diagnostic-odyssey-a-caregivers-journey","status":"publish","type":"acf_article","link":"https:\/\/labinsights.com\/RU_ru\/event-coverage\/red-2022\/rare-genetic-disease-and-the-diagnostic-odyssey-a-caregivers-journey\/","title":{"rendered":"\u0420\u0435\u0434\u043a\u043e\u0435 \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u0435\u0441\u043a\u043e\u0435 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0435 \u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u0447\u0435\u0441\u043a\u0430\u044f \u043e\u0434\u0438\u0441\u0441\u0435\u044f: \u043f\u0443\u0442\u044c \u043e\u0441\u0443\u0449\u0435\u0441\u0442\u0432\u043b\u044f\u044e\u0449\u0438\u0445 \u0443\u0445\u043e\u0434"},"content":{"rendered":"<p class=\"text-align-justify\">\u0410\u0440\u0438\u0445\u0430\u0439 \u0413\u0440\u0438\u043d (Arihai Greene) \u0440\u043e\u0434\u0438\u043b\u0441\u044f \u0432 \u0434\u0435\u043a\u0430\u0431\u0440\u0435 2021 \u0433\u043e\u0434\u0430 \u0441 \u043f\u0440\u0438\u0437\u043d\u0430\u043a\u0430\u043c\u0438 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u0430 \u041f\u0440\u0430\u0434\u0435\u0440\u0430-\u0412\u0438\u043b\u043b\u0438 (\u0421\u041f\u0412), \u0440\u0435\u0434\u043a\u043e\u0433\u043e \u0438 \u0441\u0435\u0440\u044c\u0435\u0437\u043d\u043e\u0433\u043e \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u0435\u0441\u043a\u043e\u0433\u043e \u043d\u0430\u0440\u0443\u0448\u0435\u043d\u0438\u044f, \u043a\u043e\u0442\u043e\u0440\u043e\u0435 \u0432\u043a\u043b\u044e\u0447\u0430\u0435\u0442 \u0441\u043b\u043e\u0436\u043d\u044b\u0439 \u0441\u043f\u0435\u043a\u0442\u0440 \u043a\u043e\u0433\u043d\u0438\u0442\u0438\u0432\u043d\u044b\u0445 \u0438 \u043f\u043e\u0432\u0435\u0434\u0435\u043d\u0447\u0435\u0441\u043a\u0438\u0445 \u043d\u0430\u0440\u0443\u0448\u0435\u043d\u0438\u0439, \u043f\u0440\u043e\u0431\u043b\u0435\u043c \u0440\u0430\u0437\u0432\u0438\u0442\u0438\u044f. \u041d\u0430 \u044d\u0442\u043e\u0439 \u0441\u0435\u0441\u0441\u0438\u0438 \u0435\u0433\u043e \u043e\u0442\u0435\u0446 \u0440\u0430\u0441\u0441\u043a\u0430\u0436\u0435\u0442 \u043e \u0434\u043b\u0438\u0442\u0435\u043b\u044c\u043d\u043e\u043c \u043f\u0443\u0442\u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u0447\u0435\u0441\u043a\u0438\u0445 \u043e\u0431\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u0439, \u0432 \u0442\u043e\u043c \u0447\u0438\u0441\u043b\u0435 \u044d\u043c\u043e\u0446\u0438\u043e\u043d\u0430\u043b\u044c\u043d\u044b\u0445 \u043f\u0435\u0440\u0435\u0436\u0438\u0432\u0430\u043d\u0438\u044f\u0445, \u0441\u0432\u044f\u0437\u0430\u043d\u043d\u044b\u0445 \u0441 \u0432\u0437\u0430\u0438\u043c\u043e\u0434\u0435\u0439\u0441\u0442\u0432\u0438\u0435\u043c \u0441 \u0441\u0438\u0441\u0442\u0435\u043c\u043e\u0439 \u0437\u0434\u0440\u0430\u0432\u043e\u043e\u0445\u0440\u0430\u043d\u0435\u043d\u0438\u044f \u0421\u0438\u043d\u0433\u0430\u043f\u0443\u0440\u0430, \u0438 \u0436\u0438\u0437\u043d\u0438 \u0441 \u0434\u0438\u0430\u0433\u043d\u043e\u0437\u043e\u043c \u0421\u041f\u0412. \u041e\u043d \u0442\u0430\u043a\u0436\u0435 \u043f\u043e\u0434\u0447\u0435\u0440\u043a\u043d\u0435\u0442 \u0432\u043e\u0437\u043c\u043e\u0436\u043d\u043e\u0441\u0442\u0438 \u0443\u043b\u0443\u0447\u0448\u0435\u043d\u0438\u044f \u043a\u0430\u0447\u0435\u0441\u0442\u0432\u0430 \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u043a\u0438 \u0438 \u043e\u0431\u0441\u043b\u0443\u0436\u0438\u0432\u0430\u043d\u0438\u044f \u043f\u0430\u0446\u0438\u0435\u043d\u0442\u043e\u0432 \u0441 \u0440\u0435\u0434\u043a\u0438\u043c\u0438 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u044f\u043c\u0438 \u0434\u043b\u044f \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0441\u043a\u0438\u0445 \u0440\u0430\u0431\u043e\u0442\u043d\u0438\u043a\u043e\u0432.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u0410\u0440\u0438\u0445\u0430\u0439 \u0413\u0440\u0438\u043d (Arihai Greene) \u0440\u043e\u0434\u0438\u043b\u0441\u044f \u0432 \u0434\u0435\u043a\u0430\u0431\u0440\u0435 2021 \u0433\u043e\u0434\u0430 \u0441 \u043f\u0440\u0438\u0437\u043d\u0430\u043a\u0430\u043c\u0438 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u0430 \u041f\u0440\u0430\u0434\u0435\u0440\u0430-\u0412\u0438\u043b\u043b\u0438 (\u0421\u041f\u0412), \u0440\u0435\u0434\u043a\u043e\u0433\u043e \u0438 \u0441\u0435\u0440\u044c\u0435\u0437\u043d\u043e\u0433\u043e \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u0435\u0441\u043a\u043e\u0433\u043e \u043d\u0430\u0440\u0443\u0448\u0435\u043d\u0438\u044f, \u043a\u043e\u0442\u043e\u0440\u043e\u0435 \u0432\u043a\u043b\u044e\u0447\u0430\u0435\u0442 \u0441\u043b\u043e\u0436\u043d\u044b\u0439 \u0441\u043f\u0435\u043a\u0442\u0440 \u043a\u043e\u0433\u043d\u0438\u0442\u0438\u0432\u043d\u044b\u0445 \u0438 \u043f\u043e\u0432\u0435\u0434\u0435\u043d\u0447\u0435\u0441\u043a\u0438\u0445 \u043d\u0430\u0440\u0443\u0448\u0435\u043d\u0438\u0439, \u043f\u0440\u043e\u0431\u043b\u0435\u043c \u0440\u0430\u0437\u0432\u0438\u0442\u0438\u044f. \u041d\u0430 \u044d\u0442\u043e\u0439 \u0441\u0435\u0441\u0441\u0438\u0438 \u0435\u0433\u043e \u043e\u0442\u0435\u0446 \u0440\u0430\u0441\u0441\u043a\u0430\u0436\u0435\u0442 \u043e \u0434\u043b\u0438\u0442\u0435\u043b\u044c\u043d\u043e\u043c \u043f\u0443\u0442\u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u0447\u0435\u0441\u043a\u0438\u0445 \u043e\u0431\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u0439, \u0432 \u0442\u043e\u043c \u0447\u0438\u0441\u043b\u0435 \u044d\u043c\u043e\u0446\u0438\u043e\u043d\u0430\u043b\u044c\u043d\u044b\u0445 \u043f\u0435\u0440\u0435\u0436\u0438\u0432\u0430\u043d\u0438\u044f\u0445, \u0441\u0432\u044f\u0437\u0430\u043d\u043d\u044b\u0445 \u0441 \u0432\u0437\u0430\u0438\u043c\u043e\u0434\u0435\u0439\u0441\u0442\u0432\u0438\u0435\u043c \u0441 \u0441\u0438\u0441\u0442\u0435\u043c\u043e\u0439 \u0437\u0434\u0440\u0430\u0432\u043e\u043e\u0445\u0440\u0430\u043d\u0435\u043d\u0438\u044f \u0421\u0438\u043d\u0433\u0430\u043f\u0443\u0440\u0430, \u0438 \u0436\u0438\u0437\u043d\u0438 \u0441 [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":134369,"parent":0,"menu_order":0,"template":"","meta":{"_acf_changed":false,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"tags":[11561,11406,11407],"pillarandcategory":[8098,282,296,293,294],"reporter":[11411],"class_list":["post-134368","acf_article","type-acf_article","status-publish","has-post-thumbnail","hentry","tag-red-2022","tag-11406","tag-11407","pillarandcategory-red-2022","pillarandcategory-disease-area","pillarandcategory-event-coverage","pillarandcategory-newborn-screening","pillarandcategory-rare-diseases","reporter-will-greene"],"acf":[],"_links":{"self":[{"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/acf_article\/134368","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/acf_article"}],"about":[{"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/types\/acf_article"}],"author":[{"embeddable":true,"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/users\/1"}],"version-history":[{"count":1,"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/acf_article\/134368\/revisions"}],"predecessor-version":[{"id":134435,"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/acf_article\/134368\/revisions\/134435"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/media\/134369"}],"wp:attachment":[{"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/media?parent=134368"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/tags?post=134368"},{"taxonomy":"pillarandcategory","embeddable":true,"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/pillarandcategory?post=134368"},{"taxonomy":"reporter","embeddable":true,"href":"https:\/\/labinsights.com\/RU_ru\/wp-json\/wp\/v2\/reporter?post=134368"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}