{"id":147165,"date":"2023-04-12T07:58:11","date_gmt":"2023-04-12T07:58:11","guid":{"rendered":"https:\/\/labinsights.com\/acf_article\/chan-doan-va-dieu-tri-benh-mau-kho-dong-giup-thuc-day-cach-thuc-tiep-can-cho-tat-ca-moi-nguoi-nhu-the-nao\/"},"modified":"2026-01-27T09:55:16","modified_gmt":"2026-01-27T09:55:16","slug":"how-haemophilia-diagnostics-and-treatments-help-drive-access-for-all","status":"publish","type":"acf_article","link":"https:\/\/labinsights.com\/vi\/disease-area\/coagulation\/how-haemophilia-diagnostics-and-treatments-help-drive-access-for-all\/","title":{"rendered":"Ch\u1ea9n \u0111o\u00e1n v\u00e0 \u0111i\u1ec1u tr\u1ecb b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng gi\u00fap th\u00fac \u0111\u1ea9y c\u00e1ch th\u1ee9c \u201cTi\u1ebfp c\u1eadn cho t\u1ea5t c\u1ea3 m\u1ecdi ng\u01b0\u1eddi\u201d nh\u01b0 th\u1ebf n\u00e0o"},"content":{"rendered":"

Ng\u00e0y 17 th\u00e1ng 4 l\u00e0 World Haemophilia Day<\/a>, m\u1ed9t chi\u1ebfn d\u1ecbch qu\u1ed1c t\u1ebf \u0111\u01b0\u1ee3c thi\u1ebft k\u1ebf \u0111\u1ec3 t\u00f4n vinh nh\u1eefng ng\u01b0\u1eddi v\u00e0 gia \u0111\u00ecnh \u0111ang \u0111\u1ed1i ph\u00f3 v\u1edbi t\u00ecnh tr\u1ea1ng hi\u1ebfm g\u1eb7p n\u00e0y v\u00e0 n\u00e2ng cao nh\u1eadn th\u1ee9c v\u1ec1 c\u0103n b\u1ec7nh. Chi\u1ebfn d\u1ecbch n\u0103m nay t\u1eadp trung v\u00e0o \u201cTi\u1ebfp c\u1eadn cho t\u1ea5t c\u1ea3 m\u1ecdi ng\u01b0\u1eddi: Ph\u00f2ng ng\u1eeba ch\u1ea3y m\u00e1u nh\u01b0 ti\u00eau chu\u1ea9n ch\u0103m s\u00f3c to\u00e0n c\u1ea7u\u201d v\u00e0 \u0111\u1ea3m b\u1ea3o r\u1eb1ng c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb c\u00f3 s\u1eb5n tr\u00ean to\u00e0n th\u1ebf gi\u1edbi. Ch\u1ea9n \u0111o\u00e1n trong ph\u00f2ng x\u00e9t nghi\u1ec7m l\u00e2m s\u00e0ng c\u00f3 th\u1ec3 \u0111\u00f3ng m\u1ed9t vai tr\u00f2 quan tr\u1ecdng trong vi\u1ec7c \u0111\u1ea1t \u0111\u01b0\u1ee3c m\u1ee5c ti\u00eau n\u00e0y. B\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng c\u00f3 li\u00ean quan \u0111\u1ebfn ch\u1ea3y m\u00e1u kh\u00f4ng ki\u1ec3m so\u00e1t \u0111\u01b0\u1ee3c do kh\u00f4ng \u0111\u1ee7 y\u1ebfu t\u1ed1 \u0111\u00f4ng m\u00e1u trong m\u00e1u. B\u1ec7nh nh\u00e2n th\u01b0\u1eddng c\u00f3 y\u1ebfu t\u1ed1 VIII (b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng A) ho\u1eb7c y\u1ebfu t\u1ed1 IX (b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng B) th\u1ea5p; m\u1ee9c \u0111\u1ed9 nghi\u00eam tr\u1ecdng c\u1ee7a t\u00ecnh tr\u1ea1ng t\u0103ng khi n\u1ed3ng \u0111\u1ed9 gi\u1ea3m. Ngay c\u1ea3 nh\u1eefng ch\u1ea5n th\u01b0\u01a1ng nh\u1eb9 c\u0169ng c\u00f3 th\u1ec3 nguy hi\u1ec3m cho nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng v\u00e0 ph\u1eabu thu\u1eadt c\u00f3 th\u1ec3 r\u1ea5t kh\u00f3 kh\u0103n. B\u1ec7nh n\u00e0y c\u0169ng c\u00f3 th\u1ec3 g\u00e2y ra ch\u1ea3y m\u00e1u t\u1ef1 ph\u00e1t trong c\u00e1c kh\u1edbp, d\u1eabn \u0111\u1ebfn \u0111au kh\u1edbp m\u1ea1n t\u00ednh. H\u01a1n 200.000 ng\u01b0\u1eddi tr\u00ean th\u1ebf gi\u1edbi \u0111ang s\u1ed1ng chung v\u1edbi ch\u1ee9ng b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng. M\u1eb7c d\u00f9 \u0111\u00e2y l\u00e0 t\u00ecnh tr\u1ea1ng r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u hi\u1ebfm g\u1eb7p, nh\u01b0ng vi\u1ec7c \u1ee7ng h\u1ed9 c\u1ed9ng \u0111\u1ed3ng b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng to\u00e0n c\u1ea7u \u0111\u00e3 th\u00fac \u0111\u1ea9y nh\u1eadn th\u1ee9c r\u1ed9ng r\u00e3i v\u1ec1 t\u00ecnh tr\u1ea1ng n\u00e0y. V\u00ec b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng c\u00f3 li\u00ean quan \u0111\u1ebfn m\u1ed9t bi\u1ebfn th\u1ec3 l\u1eb7n li\u00ean k\u1ebft X, n\u00ean ph\u1ed5 bi\u1ebfn h\u01a1n \u1edf nam gi\u1edbi so v\u1edbi n\u1eef gi\u1edbi. H\u1ea7u h\u1ebft nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng \u0111\u1ec1u sinh ra \u0111\u00e3 m\u1eafc ph\u1ea3i c\u0103n b\u1ec7nh n\u00e0y, nh\u01b0ng trong m\u1ed9t s\u1ed1 tr\u01b0\u1eddng h\u1ee3p, b\u1ec7nh c\u00f3 th\u1ec3 ph\u00e1t tri\u1ec3n m\u1ed9t c\u00e1ch t\u1ef1 ph\u00e1t. V\u1edbi vi\u1ec7c ra m\u1eaft c\u00e1c li\u1ec7u ph\u00e1p m\u1edbi cho b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng, nhi\u1ec1u n\u1ed7 l\u1ef1c trong c\u1ed9ng \u0111\u1ed3ng \u0111\u00e3 t\u1eadp trung v\u00e0o vi\u1ec7c m\u1edf r\u1ed9ng kh\u1ea3 n\u0103ng ti\u1ebfp c\u1eadn c\u1ee7a b\u1ec7nh nh\u00e2n \u0111\u1ed1i v\u1edbi c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb n\u00e0y. Ngo\u00e0i ra, c\u00e1c x\u00e9t nghi\u1ec7m ch\u1ea9n \u0111o\u00e1n trong ph\u00f2ng x\u00e9t nghi\u1ec7m \u2014 \u0111\u01b0\u1ee3c s\u1eed d\u1ee5ng \u0111\u1ec3 x\u00e1c \u0111\u1ecbnh t\u00ecnh tr\u1ea1ng b\u1ec7nh, theo d\u00f5i ph\u1ea3n \u1ee9ng v\u1edbi \u0111i\u1ec1u tr\u1ecb, k\u1ebft n\u1ed1i b\u1ec7nh nh\u00e2n v\u1edbi c\u00e1c li\u1ec7u ph\u00e1p \u0111i\u1ec1u tr\u1ecb m\u1edbi n\u1ed5i ho\u1eb7c \u0111\u00e1nh gi\u00e1 t\u00ecnh tr\u1ea1ng mang gene \u2014 c\u0169ng l\u00e0 nh\u1eefng c\u00f4ng c\u1ee5 m\u1ea1nh m\u1ebd gi\u00fap b\u1ed5 sung cho n\u1ed7 l\u1ef1c m\u1edf r\u1ed9ng kh\u1ea3 n\u0103ng ti\u1ebfp c\u1eadn ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe ch\u1ea5t l\u01b0\u1ee3ng cho t\u1ea5t c\u1ea3 m\u1ecdi ng\u01b0\u1eddi. <\/p>\n

Ch\u1ea9n \u0111o\u00e1n b\u1ec7nh v\u00e0 \u0111\u00e1nh gi\u00e1 t\u00ecnh tr\u1ea1ng ng\u01b0\u1eddi mang m\u1ea7m b\u1ec7nh <\/h2>\n

M\u1ed9t trong nh\u1eefng y\u1ebfu t\u1ed1 ch\u00ednh d\u1eabn \u0111\u1ebfn s\u1ef1 b\u1ea5t b\u00ecnh \u0111\u1eb3ng trong ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe l\u00e0 thi\u1ebfu s\u1ef1 ti\u1ebfp c\u1eadn \u0111\u1ed3ng \u0111\u1ec1u v\u1edbi c\u00e1c x\u00e9t nghi\u1ec7m ch\u1ea9n \u0111o\u00e1n ch\u1ea5t l\u01b0\u1ee3ng cao, \u0111\u1eb7c bi\u1ec7t l\u00e0 \u1edf c\u00e1c h\u1ec7 th\u1ed1ng y t\u1ebf c\u00f3 ngu\u1ed3n l\u1ef1c h\u1ea1n ch\u1ebf. Cho \u0111\u1ebfn khi b\u1ec7nh nh\u00e2n m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng nh\u1eadn \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n ban \u0111\u1ea7u quan tr\u1ecdng, h\u1ecd kh\u00f4ng th\u1ec3 nh\u1eadn \u0111\u01b0\u1ee3c s\u1ef1 ch\u0103m s\u00f3c quan tr\u1ecdng c\u1ea7n thi\u1ebft \u0111\u1ec3 ki\u1ec3m so\u00e1t c\u00e1c t\u00ecnh tr\u1ea1ng c\u1ee7a h\u1ecd v\u00e0 s\u1ed1ng m\u1ed9t cu\u1ed9c s\u1ed1ng an to\u00e0n, kh\u1ecfe m\u1ea1nh. Th\u1eadt kh\u00f4ng may, nhi\u1ec1u b\u1ec7nh nh\u00e2n kh\u00f4ng \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n cho \u0111\u1ebfn khi h\u1ecd tr\u1ea3i qua m\u1ed9t s\u1ed1 lo\u1ea1i bi\u1ebfn c\u1ed1 ch\u1ea5n th\u01b0\u01a1ng v\u1edbi ch\u1ea3y m\u00e1u nguy hi\u1ec3m, ngo\u00e0i t\u1ea7m ki\u1ec3m so\u00e1t c\u1ea3nh b\u00e1o c\u00e1c b\u00e1c s\u0129 v\u1ec1 kh\u1ea3 n\u0103ng m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng. Ph\u00f3 Gi\u00e1o s\u01b0 Joyce Lam, T\u01b0 v\u1ea5n vi\u00ean cao c\u1ea5p, D\u1ecbch v\u1ee5 Huy\u1ebft h\u1ecdc\/Ung th\u01b0, B\u1ec7nh vi\u1ec7n Ph\u1ee5 n\u1eef v\u00e0 Tr\u1ebb em KK t\u1ea1i Singapore, ng\u01b0\u1eddi \u0111\u1ee9ng \u0111\u1ea7u ph\u00f2ng x\u00e9t nghi\u1ec7m huy\u1ebft h\u1ecdc v\u00e0 ng\u00e2n h\u00e0ng m\u00e1u c\u1ee7a b\u1ec7nh vi\u1ec7n cho bi\u1ebft: \u201cTh\u00e1ch th\u1ee9c n\u1eb1m \u1edf vi\u1ec7c nh\u1eadn di\u1ec7n v\u00e0 x\u00e1c \u0111\u1ecbnh nh\u1eefng c\u00e1 nh\u00e2n m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng.\u201d \u201cC\u00e1c r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u b\u1ea9m sinh c\u00f3 th\u1ec3 kh\u00f4ng n\u1eb1m trong nh\u1eefng ch\u1ea9n \u0111o\u00e1n ph\u00e2n bi\u1ec7t h\u00e0ng \u0111\u1ea7u c\u1ee7a nh\u1eefng b\u1ec7nh nh\u00e2n c\u00f3 tri\u1ec7u ch\u1ee9ng ch\u1ea3y m\u00e1u, v\u00ec \u0111\u00e2y \u0111\u01b0\u1ee3c coi l\u00e0 nh\u1eefng t\u00ecnh tr\u1ea1ng hi\u1ebfm g\u1eb7p.\u201d \u201cVi\u1ec7c gi\u00e1o d\u1ee5c c\u00e1c nh\u00e0 cung c\u1ea5p d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe \u0111\u1ec3 t\u00ecm ra c\u00e1c t\u00ecnh tr\u1ea1ng ch\u1ea3y m\u00e1u b\u1ea9m sinh n\u00e0y tr\u1edf n\u00ean r\u1ea5t quan tr\u1ecdng.\u201d\u00a0\u00a0\u201cKhi h\u1ecd \u0111\u00e3 \u0111\u01b0\u1ee3c x\u00e1c \u0111\u1ecbnh, vi\u1ec7c s\u00e0ng l\u1ecdc gia \u0111\u00ecnh n\u00ean \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n \u0111\u1ec3 ph\u00e1t hi\u1ec7n c\u00e1c b\u1ec7nh nh\u00e2n nam kh\u00e1c c\u00f3 nguy c\u01a1 m\u1eafc b\u1ec7nh v\u00e0 c\u00e1c ph\u1ee5 n\u1eef mang gene trong c\u00f9ng m\u1ed9t gia \u0111\u00ecnh.\u201d C\u00e1c x\u00e9t nghi\u1ec7m \u0111\u01b0\u1ee3c s\u1eed d\u1ee5ng \u0111\u1ec3 ch\u1ea9n \u0111o\u00e1n r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u b\u1ea9m sinh nh\u01b0 b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng kh\u00e1 th\u00f4ng th\u01b0\u1eddng; ch\u00fang \u0111\u01b0\u1ee3c s\u1eed d\u1ee5ng m\u1ed9t c\u00e1ch nh\u1ea5t qu\u00e1n trong c\u00e1c ph\u00f2ng x\u00e9t nghi\u1ec7m tr\u00ean to\u00e0n th\u1ebf gi\u1edbi. T\u1eeb x\u00e9t nghi\u1ec7m c\u00f4ng th\u1ee9c m\u00e1u to\u00e0n ph\u1ea7n (CBC) \u0111\u1ebfn m\u1ed9t lo\u1ea1t c\u00e1c ch\u1ea9n \u0111o\u00e1n \u0111\u00f4ng m\u00e1u nh\u01b0 PT, APTT v\u00e0 fibrinogen, c\u00f3 nhi\u1ec1u x\u00e9t nghi\u1ec7m \u0111\u01b0\u1ee3c s\u1eed d\u1ee5ng trong s\u00e0ng l\u1ecdc th\u01b0\u1eddng quy c\u00e1c r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u nh\u01b0 b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng (xem Ch\u1ea9n \u0111o\u00e1n v\u00e0 \u0111i\u1ec1u tr\u1ecb b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng: gi\u1edbi thi\u1ec7u<\/a> ng\u1eafn g\u1ecdn v\u1ec1 t\u1ed5ng quan chi ti\u1ebft v\u1ec1 quy tr\u00ecnh ch\u1ea9n \u0111o\u00e1n). T\u1ea5t c\u1ea3 c\u00e1c x\u00e9t nghi\u1ec7m n\u00e0y th\u01b0\u1eddng \u0111\u01b0\u1ee3c coi l\u00e0 x\u00e9t nghi\u1ec7m s\u00e0ng l\u1ecdc th\u01b0\u1eddng quy cho c\u00e1c r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u. N\u1ebfu c\u00e1c x\u00e9t nghi\u1ec7m \u0111\u00f3 ch\u1ee9ng minh r\u1eb1ng m\u00e1u c\u1ee7a b\u1ec7nh nh\u00e2n kh\u00f4ng \u0111\u00f4ng m\u00e1u \u0111\u00fang c\u00e1ch, c\u00f3 th\u1ec3 tri\u1ec3n khai c\u00e1c x\u00e9t nghi\u1ec7m theo d\u00f5i \u0111\u1ec3 x\u00e1c \u0111\u1ecbnh ch\u00ednh x\u00e1c r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u. N\u1ebfu b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n, c\u00e1c x\u00e9t nghi\u1ec7m ti\u1ebfp theo \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n \u0111\u1ec3 \u0111\u00e1nh gi\u00e1 m\u1ee9c \u0111\u1ed9 nghi\u00eam tr\u1ecdng c\u1ee7a t\u00ecnh tr\u1ea1ng. C\u00e1c x\u00e9t nghi\u1ec7m s\u1ebd t\u1eadp trung v\u00e0o m\u1ee9c \u0111\u1ed9 c\u1ee5 th\u1ec3 c\u1ee7a y\u1ebfu t\u1ed1 VIII v\u00e0 y\u1ebfu t\u1ed1 IX, ph\u00e2n lo\u1ea1i b\u1ec7nh nh\u00e2n m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng nh\u1eb9, trung b\u00ecnh ho\u1eb7c nghi\u00eam tr\u1ecdng. M\u1ed9t l\u0129nh v\u1ef1c kh\u00e1c m\u00e0 c\u00e1c c\u00f4ng c\u1ee5 ch\u1ea9n \u0111o\u00e1n c\u00f3 th\u1ec3 t\u1ea1o ra s\u1ef1 kh\u00e1c bi\u1ec7t trong h\u00e0nh tr\u00ecnh m\u00e1u kh\u00f3 \u0111\u00f4ng l\u00e0 c\u00e1c quy\u1ebft \u0111\u1ecbnh sinh s\u1ea3n. C\u00f3 th\u1ec3 s\u1eed d\u1ee5ng x\u00e9t nghi\u1ec7m di truy\u1ec1n \u0111\u1ec3 x\u00e1c \u0111\u1ecbnh ng\u01b0\u1eddi mang b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng \u2014 bao g\u1ed3m c\u1ea3 nh\u1eefng ph\u1ee5 n\u1eef th\u1eadm ch\u00ed kh\u00f4ng bi\u1ebft nguy c\u01a1 m\u1eafc b\u1ec7nh c\u1ee7a m\u00ecnh \u2014 \u0111\u1ec3 h\u1ecd c\u00f3 th\u1ec3 \u0111\u01b0a ra quy\u1ebft \u0111\u1ecbnh s\u00e1ng su\u1ed1t v\u1ec1 c\u00e1c l\u1ef1a ch\u1ecdn sinh \u0111\u1ebb. <\/p>\n

C\u00e1c l\u1ef1a ch\u1ecdn \u0111i\u1ec1u tr\u1ecb v\u00e0 theo d\u00f5i k\u1ebft qu\u1ea3<\/h2>\n

Sau ch\u1ea9n \u0111o\u00e1n ban \u0111\u1ea7u, ph\u00f2ng x\u00e9t nghi\u1ec7m l\u00e2m s\u00e0ng ti\u1ebfp t\u1ee5c \u0111\u00f3ng m\u1ed9t vai tr\u00f2 quan tr\u1ecdng khi c\u00e1c b\u00e1c s\u0129 t\u00ecm c\u00e1ch theo d\u00f5i \u0111\u00e1p \u1ee9ng v\u1edbi c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng. C\u00e1c x\u00e9t nghi\u1ec7m y\u1ebfu t\u1ed1 \u0111\u1eb7c hi\u1ec7u \u0111\u01b0\u1ee3c s\u1eed d\u1ee5ng \u0111\u1ec3 theo d\u00f5i \u0111\u00e1p \u1ee9ng v\u1edbi c\u00e1c li\u1ec7u ph\u00e1p ti\u00eau chu\u1ea9n ch\u0103m s\u00f3c hi\u1ec7n t\u1ea1i nh\u1eb1m m\u1ee5c \u0111\u00edch thay th\u1ebf c\u00e1c y\u1ebfu t\u1ed1 \u0111\u00f4ng m\u00e1u thi\u1ebfu h\u1ee5t v\u1edbi c\u00e1c y\u1ebfu t\u1ed1 huy\u1ebft t\u01b0\u01a1ng ho\u1eb7c c\u00e1c s\u1ea3n ph\u1ea9m y\u1ebfu t\u1ed1 t\u00e1i t\u1ed5 h\u1ee3p. Theo d\u00f5i li\u00ean t\u1ee5c theo th\u1eddi gian l\u00e0 r\u1ea5t quan tr\u1ecdng \u0111\u1ec3 x\u00e1c nh\u1eadn hi\u1ec7u qu\u1ea3 ti\u1ebfp t\u1ee5c c\u1ee7a li\u1ec7u ph\u00e1p v\u00e0 \u0111\u1ec3 ki\u1ec3m tra s\u1ef1 ph\u00e1t tri\u1ec3n c\u1ee7a c\u00e1c ch\u1ea5t \u1ee9c ch\u1ebf. \u1ede c\u1ea3 tr\u1ebb em v\u00e0 ng\u01b0\u1eddi l\u1edbn, li\u1ec7u ph\u00e1p thay th\u1ebf \u0111\u01b0\u1ee3c s\u1eed d\u1ee5ng d\u1ef1 ph\u00f2ng \u0111\u1ec3 ng\u0103n ng\u1eeba ch\u1ea3y m\u00e1u nguy hi\u1ec3m v\u00e0 b\u1ea3o v\u1ec7 s\u1ee9c kho\u1ebb v\u00e0 ch\u1ee9c n\u0103ng c\u1ee7a kh\u1edbp. Ph\u00f3 Gi\u00e1o s\u01b0 Lam cho bi\u1ebft: \u201cV\u1edbi chi\u1ebfn l\u01b0\u1ee3c qu\u1ea3n l\u00fd ph\u00f9 h\u1ee3p li\u00ean quan \u0111\u1ebfn vi\u1ec7c thay th\u1ebf th\u01b0\u1eddng xuy\u00ean c\u00e1c y\u1ebfu t\u1ed1 \u0111\u00f4ng m\u00e1u t\u1eadp trung, t\u1eadp luy\u1ec7n th\u1ec3 ch\u1ea5t v\u00e0 s\u1eed d\u1ee5ng c\u00e1c thi\u1ebft b\u1ecb b\u1ea3o v\u1ec7, nhi\u1ec1u b\u1ec7nh nh\u00e2n c\u00f3 th\u1ec3 s\u1ed1ng cu\u1ed9c s\u1ed1ng n\u0103ng \u0111\u1ed9ng v\u00e0 tham gia v\u00e0o m\u1ed9t s\u1ed1 m\u00f4n th\u1ec3 thao, ngay c\u1ea3 \u1edf m\u1ee9c \u0111\u1ed9 c\u1ea1nh tranh.\u201d Nh\u1eefng k\u1ebft qu\u1ea3 t\u00edch c\u1ef1c n\u00e0y \u0111\u00e3 \u0111\u01b0\u1ee3c h\u1ed7 tr\u1ee3 b\u1edfi m\u1ed9t s\u1ef1 ti\u1ebfn tri\u1ec3n trong \u0111i\u1ec1u tr\u1ecb b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng trong nh\u1eefng n\u0103m qua. C\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb m\u1edbi, bao g\u1ed3m c\u1ea3 li\u1ec7u ph\u00e1p gen, \u0111\u00e3 xu\u1ea5t hi\u1ec7n trong nh\u1eefng n\u0103m g\u1ea7n \u0111\u00e2y, m\u1eb7c d\u00f9 ch\u00fang hi\u1ec7n kh\u00f4ng th\u1ec3 ti\u1ebfp c\u1eadn \u0111\u01b0\u1ee3c \u1edf t\u1ea5t c\u1ea3 c\u00e1c qu\u1ed1c gia (xem C\u00e1c li\u1ec7u ph\u00e1p \u0111i\u1ec1u tr\u1ecb b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng m\u1edbi ph\u00e1t tri\u1ec3n nh\u1ea5n m\u1ea1nh nhu c\u1ea7u ch\u1ea9n \u0111o\u00e1n ch\u1ea5t l\u01b0\u1ee3ng <\/a>\u0111\u1ec3 th\u1ea3o lu\u1eadn s\u00e2u h\u01a1n v\u1ec1 c\u00e1c ph\u01b0\u01a1ng th\u1ee9c \u0111i\u1ec1u tr\u1ecb m\u1edbi). Tuy nhi\u00ean, c\u1ea7n ti\u1ebfp t\u1ee5c ph\u00e1t tri\u1ec3n c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb t\u1ed1t h\u01a1n \u0111\u1ec3 b\u1ec7nh nh\u00e2n c\u00f3 k\u1ebft qu\u1ea3 t\u1ed1t h\u01a1n, l\u00fd t\u01b0\u1edfng l\u00e0 lo\u1ea1i b\u1ecf nhu c\u1ea7u \u0111i\u1ec1u tr\u1ecb thay th\u1ebf \u0111\u1ecbnh k\u1ef3. C\u00f9ng v\u1edbi \u0111\u1ed9i ng\u0169 c\u1ee7a m\u00ecnh, Ph\u00f3 Gi\u00e1o s\u01b0 Lam nh\u1eb1m m\u1ee5c \u0111\u00edch c\u1ea3i thi\u1ec7n ch\u1ea5t l\u01b0\u1ee3ng ch\u0103m s\u00f3c b\u1ec7nh nh\u00e2n m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng b\u1eb1ng c\u00e1ch thu th\u1eadp th\u00eam d\u1eef li\u1ec7u \u2014 m\u1ed9t vai tr\u00f2 quan tr\u1ecdng kh\u00e1c c\u1ee7a c\u00e1c ph\u00f2ng x\u00e9t nghi\u1ec7m l\u00e2m s\u00e0ng. B\u00e0 cho bi\u1ebft: \u201cCh\u00fang t\u00f4i \u0111ang gi\u1ea3i quy\u1ebft nhu c\u1ea7u thu th\u1eadp th\u00f4ng tin y t\u1ebf v\u00e0 d\u1eef li\u1ec7u k\u1ebft qu\u1ea3 cho nh\u00f3m b\u1ec7nh nh\u00e2n b\u1ecb r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u tr\u00ean quy m\u00f4 qu\u1ed1c gia th\u00f4ng qua c\u01a1 quan \u0111\u0103ng k\u00fd b\u1ec7nh nh\u00e2n, \u0111\u1ec3 ch\u00fang t\u00f4i c\u00f3 th\u1ec3 \u0111\u00e1nh gi\u00e1 t\u1ed1t h\u01a1n v\u1ec1 ch\u1ea5t l\u01b0\u1ee3ng c\u1ee7a c\u00e1c chi\u1ebfn l\u01b0\u1ee3c \u0111i\u1ec1u tr\u1ecb v\u00e0 li\u00ean t\u1ee5c c\u1ea3i thi\u1ec7n c\u00e1c ti\u00eau chu\u1ea9n ch\u0103m s\u00f3c cho b\u1ec7nh nh\u00e2n c\u1ee7a ch\u00fang t\u00f4i\u201d. V\u1edbi vi\u1ec7c theo d\u00f5i c\u1ea9n th\u1eadn v\u00e0 \u0111i\u1ec1u tr\u1ecb \u0111\u00fang c\u00e1ch, b\u1ec7nh nh\u00e2n m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng c\u00f3 th\u1ec3 c\u00f3 m\u1ed9t cu\u1ed9c s\u1ed1ng t\u01b0\u01a1ng \u0111\u1ed1i b\u00ecnh th\u01b0\u1eddng v\u00e0 ho\u00e0n th\u00e0nh. Trao quy\u1ec1n cho b\u1ec7nh nh\u00e2n th\u00f4ng qua x\u00e9t nghi\u1ec7m ch\u1ea9n \u0111o\u00e1n v\u00e0 \u0111i\u1ec1u tr\u1ecb hi\u1ec7u qu\u1ea3 l\u00e0 m\u1ee5c ti\u00eau c\u00f3 th\u1ec3 \u0111\u1ea1t \u0111\u01b0\u1ee3c \u0111\u1ed1i v\u1edbi c\u00e1c chuy\u00ean gia ph\u00f2ng x\u00e9t nghi\u1ec7m l\u00e2m s\u00e0ng v\u00e0 nh\u00e0 cung c\u1ea5p d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe.<\/p>\n","protected":false},"excerpt":{"rendered":"

Ng\u00e0y 17 th\u00e1ng 4 l\u00e0 World Haemophilia Day, m\u1ed9t chi\u1ebfn d\u1ecbch qu\u1ed1c t\u1ebf \u0111\u01b0\u1ee3c thi\u1ebft k\u1ebf \u0111\u1ec3 t\u00f4n vinh nh\u1eefng ng\u01b0\u1eddi v\u00e0 gia \u0111\u00ecnh \u0111ang \u0111\u1ed1i ph\u00f3 v\u1edbi t\u00ecnh tr\u1ea1ng hi\u1ebfm g\u1eb7p n\u00e0y v\u00e0 n\u00e2ng cao nh\u1eadn th\u1ee9c v\u1ec1 c\u0103n b\u1ec7nh. Chi\u1ebfn d\u1ecbch n\u0103m nay t\u1eadp trung v\u00e0o \u201cTi\u1ebfp c\u1eadn cho t\u1ea5t c\u1ea3 m\u1ecdi ng\u01b0\u1eddi: […]<\/p>\n","protected":false},"author":1,"featured_media":85706,"parent":0,"menu_order":0,"template":"","meta":{"_acf_changed":false,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"tags":[14828,14793,14764],"pillarandcategory":[292,282,294],"reporter":[15004],"class_list":["post-147165","acf_article","type-acf_article","status-publish","has-post-thumbnail","hentry","tag-benh-hiem","tag-dong-mau","tag-singapore","pillarandcategory-coagulation","pillarandcategory-disease-area","pillarandcategory-rare-diseases","reporter-joyce-lam"],"acf":[],"_links":{"self":[{"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/acf_article\/147165","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/acf_article"}],"about":[{"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/types\/acf_article"}],"author":[{"embeddable":true,"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/users\/1"}],"version-history":[{"count":1,"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/acf_article\/147165\/revisions"}],"predecessor-version":[{"id":147799,"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/acf_article\/147165\/revisions\/147799"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/media\/85706"}],"wp:attachment":[{"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/media?parent=147165"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/tags?post=147165"},{"taxonomy":"pillarandcategory","embeddable":true,"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/pillarandcategory?post=147165"},{"taxonomy":"reporter","embeddable":true,"href":"https:\/\/labinsights.com\/vi\/wp-json\/wp\/v2\/reporter?post=147165"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}